The Central Brain Tumor Registry of the United States is a not-for-profit corporation which gathers and disseminates epidemiologic data on primary brain tumors in order to facilitate research and establish awareness of the disease.

The Central Brain Tumor Registry of the United States (CBTRUS) believes that the registration of all primary brain tumors, malignant and non-malignant, is necessary to the collection and reporting of these tumors. With the passage of Public Law 107-260 in 2002, those tumors having benign or uncertain behavior have mandated collection in the United States, and complete brain tumor registration has finally been attained in our country. The CBTRUS encourages international registries to follow these collection practices which will ultimately provide researchers with the additional numbers rare diseases like brain tumors need to find clues as to their etiology.

For brainstem tumors, problems with registration and with treatment are unique. The location of these devastating tumors, irrespective of behavior, is a difficult obstacle and compromises treatment options. The rarity of these tumors also poses a challenge to statisticians. The CBTRUS encourages international registries to follow these collection practices which will ultimately provide researchers with the additional numbers rare diseases like brain tumors need to find clues as to their etiology.

Analyses conducted and provided by the Central Brain Tumor Registry of the United States using SEER 13 registry (1992-2002) and SEER 9 registry (1973-2002) data. The CBTRUS is not responsible for interpretations of these data made elsewhere and restricts its support to its analyses and statements placed on this website.

This data has been generously provided by the Central Brain Tumor Registry of the US and their affiliated researcher, Dr. Bridget McCarthy, Ph.D, University of Illinois. Specific research was also provided by CBTRUS for JPA statistics of the brain stem. You can view the contents of these reports by clicking on the links below.

JPA Statistical Data: Pilocytic Astrocytoma Statistics

Statistical Data on JPA in the Brainstem: Brain Stem Pilocytic Astrocytoma Statistics