Stories of Inspiration

Cartoon Character Sonic The Hedgehog Inspires Lizzy’s Recovery

September 8th, 2014|

Everyone  has heroes.  Someone they look up to or someone who influenced them in their life.  My hero is Sonic The Hedgehog.  What makes Sonic so awesome to me? […]

From an Author’s Perspective

December 17th, 2013|

Marcia S., author The Spriitelees
I have three children and one of my dearest friends has three children. When my friend’s son was diagnosed with JPA two years ago, I […]

Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead Team up to raise Awareness

March 18th, 2012|

Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead team up to help raise national awareness about PLGA, an orphan disease.

Media Coverage:
Nebraska v. […]

Katie’s Headache Won’t Go Away

March 18th, 2012|

Katie had been complaining of headaches in retrospect for about a year. I chalked it up to a taste for grape flavored children’s Tylenol and a flair for the […]

Kylie’s Saga

March 18th, 2012|

It began with Kylie complaining of a headache. The pain would last briefly and then she acted fine. Looking back I feel guilty for thinking she was just being […]

Never Giving Up

March 18th, 2012|

My name is Ayis. When I was young I had dreams of being a top athlete and going to the Olympics like my father had done before me all […]

A Child’s View of Philanthropy

March 18th, 2012|

This remarkable story of how a ten-year-old girl, whose cousin has Juvenile Pilocytic Astrocytoma (JPA) , raised funds for pediatric brain tumor research. It is an inspiring story from […]

The Kids that Inspire Us

March 18th, 2012|

[kml_flashembed movie=”” height=”357″ width=”570″]

You must have Flash Player 8 or above installed on your computer to experience this movie.



Won’t you UNITE with us to raise critical funds for […]

A Grandmother’s Nightmare

March 18th, 2012|

by Linda Janower
(e-mail Linda)

This candid and heart-wrenching story, shared by a grandmother whose grandchild has JPA, reminds us all that JPA can show up in any child, at any […]

A Patient’s Perspective

March 18th, 2012|


Emily, age 16, is a PLGA survivor and she shares her insight into her experience after being diagnosed with a JPA.