Stories of Inspiration

A Devastating Diagnosis Drives Desire to Bring About Change

February 3rd, 2015|

There is no way to prepare for the unfathomable news that your child has a brain tumor.

But, prepared or not, too many parents receive the same news we did […]

Cartoon Character Sonic The Hedgehog Inspires Lizzy’s Recovery

September 8th, 2014|

Everyone  has heroes.  Someone they look up to or someone who influenced them in their life.  My hero is Sonic The Hedgehog.  What makes Sonic so awesome to me? […]

From an Author’s Perspective

December 17th, 2013|

Marcia S., author The Spriitelees
I have three children and one of my dearest friends has three children. When my friend’s son was diagnosed with JPA two years ago, I […]

Katie’s Headache Won’t Go Away

March 18th, 2012|

Katie had been complaining of headaches in retrospect for about a year. I chalked it up to a taste for grape flavored children’s Tylenol and a flair for the […]

Kylie’s Saga

March 18th, 2012|

It began with Kylie complaining of a headache. The pain would last briefly and then she acted fine. Looking back I feel guilty for thinking she was just being […]

Never Giving Up

March 18th, 2012|

My name is Ayis. When I was young I had dreams of being a top athlete and going to the Olympics like my father had done before me all […]

The Kids that Inspire Us

March 18th, 2012|

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Won’t you UNITE with us to raise critical funds for […]

A Child’s View of Philanthropy

March 18th, 2012|

This remarkable story of how a ten-year-old girl, whose cousin has Juvenile Pilocytic Astrocytoma (JPA) , raised funds for pediatric brain tumor research. It is an inspiring story from […]

A Grandmother’s Nightmare

March 18th, 2012|

by Linda Janower
(Contact AKBTC)

This candid and heart-wrenching story, shared by a grandmother whose grandchild has JPA, reminds us all that JPA can show up in any child, at any […]

A Patient’s Perspective

March 18th, 2012|


Emily, age 16, is a PLGA survivor and she shares her insight into her experience after being diagnosed with a JPA.