Stories of Inspiration

A Devastating Diagnosis Drives Desire to Bring About Change

February 3rd, 2015|

There is no way to prepare for the unfathomable news that your child has a brain tumor.

But, prepared or not, too many parents receive the same news we did […]

Cartoon Character Sonic The Hedgehog Inspires Lizzy’s Recovery

September 8th, 2014|

Everyone  has heroes.  Someone they look up to or someone who influenced them in their life.  My hero is Sonic The Hedgehog.  What makes Sonic so awesome to me? […]

From an Author’s Perspective

December 17th, 2013|

Marcia S., author The Spriitelees
www.spriitelee.com
I have three children and one of my dearest friends has three children. When my friend’s son was diagnosed with JPA two years ago, I […]

A Child’s View of Philanthropy

March 18th, 2012|

This remarkable story of how a ten-year-old girl, whose cousin has Juvenile Pilocytic Astrocytoma (JPA) , raised funds for pediatric brain tumor research. It is an inspiring story from […]

A Grandmother’s Nightmare

March 18th, 2012|

by Linda Janower
(e-mail Linda)

This candid and heart-wrenching story, shared by a grandmother whose grandchild has JPA, reminds us all that JPA can show up in any child, at any […]

A Patient’s Perspective

March 18th, 2012|

 

Emily, age 16, is a PLGA survivor and she shares her insight into her experience after being diagnosed with a JPA.

Clergy Rides for Brain Tumor Research

March 18th, 2012|

by Linda Janower
(e-mail Linda)
A moving story of the anguish of one grandparent and how one clergy leader stepped forward to help, even knowing that all of his congregants have […]

I Hope

March 18th, 2012|

By Carol Baan

I hope you never have to hear the words “your child has cancer”.

I hope you never have to hear ” the prognosis is not good”.

I hope you […]

Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead Team up to raise Awareness

March 18th, 2012|

Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead team up to help raise national awareness about PLGA, an orphan disease.

Media Coverage:
Nebraska v. […]

Katie’s Headache Won’t Go Away

March 18th, 2012|

Katie had been complaining of headaches in retrospect for about a year. I chalked it up to a taste for grape flavored children’s Tylenol and a flair for the […]