Included on this list are other Pediatric Brain Tumor Cancer Foundations as well as General Brain Tumor Cancer Foundations that may provide useful resources for parents of children with brain tumors.
Organization Description

Pediatric Brain Tumor/Cancer Foundations

Brain Tumor Foundation for Children The Brain Tumor Foundation for Children promotes public awareness and information activities, family support, and education programs; funds research; and provides a periodic newsletter.
Childhood Brain Tumor Foundation, MD (CBTF) CBTF was founded by families, friends and physicians of children with brain tumors. They are an all-volunteer organization with a mission to raise funds for scientific research, heighten public awareness and improve prognosis and quality of life for those that are affected.
Children’s Brain Tumor Foundation, NY Childrens Brain Tumor Foundation, a non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Pediatric Brain Tumor Foundation The Pediatric Brain Tumor Foundation (PBTF) is a 501 (c)(3) nonprofit organization dedicated to supporting the search for the cause of and cure for childhood brain tumors.
Candlelighters Childhood Cancer Foundation The Candlelighters Childhood Cancer Foundation National Office was founded in 1970 by concerned parents of children with cancer. Today there are over 50,000 members of the national office and more than 100,000 members across the country. Their mission is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
Pediatric Brain Tumor Consortium The National Cancer Institute (NCI) announced on April 5, 1999, that it had awarded funds for a Pediatric Brain Tumor Consortium, a network of medical centers that will evaluate promising treatments for children with brain malignancies.The consortium is intended to speed the development of innovative, technically challenging therapies. Their mission is to contribute rapidly and effectively to the understanding and cure of these tumors through the conduct of multi-center, multidisciplinary, innovative studies with designs and analyses based on uniformly high quality statistical science.The PBTC investigators also recognize their profound responsibility to meet the special needs of the children and families as they face this enormous challenge. Members are committed to working within their institutions and communities to improve support services and follow up care for these patients and their families
CureSearch (Children’s Oncology Group and the National Childhood Cancer Foundation) CureSearch unites the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF) through a shared mission to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care.

General Brain Tumor/Cancer Foundations

The National Brain Tumor Foundation NBTF is a national non-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research into better treatment options and a cure for brain tumors.
American Brain Tumor Association The ABTA provides extensive written and web accessible information about specific brain tumors, treatment options, and clinical trials; facts sheets, resource sheets, patient conferences, patient phone line, newsletter; scientific research funding. It also provides patient handbooks including ”A primer of brain tumors: A patient’s reference manual about metastatic tumors to the brain and spine” and “Dictionary for brain tumor patients”.
North American Brain Tumor Coalition The NABTC is dedicated to improving the prognosis and quality of life for brain tumor patients. The Coalition educates policymakers, and advocates for increased research into brain tumor treatments, causes and rehabilitation.
The Institute of Medicine of the National Academies The Institute provides a vital service by working outside the framework of government to ensure scientifically informed analysis and independent guidance. The IOM’s mission is to serve as adviser to the nation to improve health. The Institute provides unbiased, evidence-based, and authoritative information and advice concerning health and science policy to policy-makers, professionals, leaders in every sector of society, and the public at large.
Harvard Brain Tissue Research Center The Harvard Brain Tissue Resource Center has been established at McLean Hospital as a centralized resource for the collection and distribution of human brain specimens for brain research. Research over the past decade has shown that the study of human brain tissue is essential to increasing our understanding of how the nervous system functions. Most recently, postmortem human brain research has played a significant role in the development of a genetic test for Huntington’s disease as well as a treatment for Parkinson’s disease. Similarly, neurochemical and anatomical studies focusing on the biological nature of the severe mental illnesses are now emerging and bringing forth new hope for understanding the underlying brain mechanisms responsible for psychosis and other symptoms associated with these debilitating brain disorders. In order to perform research into the neurological or psychiatric disorders, it is vital to collect normal control tissue as well.
Brain Tumor Society The Brain Tumor Society exists to find a cure for brain tumors. We improve the quality of life of brain tumor patients, survivors and their families by providing access to psychosocial support, information and resources.
Brain Tumor Foundation of Canada Funds brain tumor research, provides patient and family support services, and educates the public. The foundation also publishes a quarterly newsletter, BrainStorm, and pediatric and adult patient resource guides.
National Cancer Institute The NCI provides information for childhood brain tumor patients about treatment, including surgery, chemotherapy, radiation therapy, and immunotherapy. They have information on clinical trials, as well as other relevant information for PLGA kids.
National Institutes of Health (NIH) Neurological Institute The nation’s leading supporter of biomedical research on disorders of the brain and nervous system, the Neurological Institute of the NIH strives to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.
ONCOLINK – University of Pennsylvania OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. ONCOLINK provides cancer information and support. Included are articles, clinical trial lists, PDG documents, CANCERNET publications, and other resources.
The Brain and Spinal Tumor Center at M.D. Anderson Cancer Center The Brain and Spine Center at M. D. Anderson is devoted to diagnosing and treating cancers of the brain, spine and skull base The site provides information on resource listings, treatment options, research summaries, clinic procedures, faculty profiles, and book lists for all ages.
Central Brain Tumor Registry of the United States A not-for-profit corporation that collects data on primary benign and malignant brain tumors into a central database.You can view some of the CBTRUS’s data on fightPLGA’s Current Research page.

Editor’s note: A Kids’ Brain Tumor Cure Foundation has provided these connections as a service to our readership. We are entirely a third party to these entities and therefore do not endorse any one site. If you have other resources to recommend, please email us at contact@akidsbraintumorcure.org.