Families with children battling brain tumors encounter many obstacles. Financial issues can play a big role in the stress for these families. Fortunately, there are some wonderful organizations that can help. Whether you are looking for help finding complimentary housing while your child is being treated at a facility far from your home, assistance with flight costs to a treatment program, or just general financial assistance due to the burden of medical costs and lost income due to your child’s illness, there is hope.

Financial Assistance

Friends of Karen

Friends of Karen’s mission is to provide emotional, financial, and advocacy support for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope. Since our founding in 1978, we have served over 4,000 children and their families regardless of race, color, creed, sex or handicap in compliance with all applicable federal, state and local laws and regulations.

914-277-4547
Michael’s Way

The mission of Michael’s Way is to help the families of children with cancer to cope with the extraordinary expenses that come about as a direct result of their child’s illness.

215-591-9198
215-344-8040
Patient Advocate Foundation

Patient Advocate Foundation seeks to empower patients to take control of their health care. Case managers work with patients to discover local, state, and federal programs that provide assistance for their individual needs.

(800) 532-5274
(757) 873-8999
ROFEH International

Reaching Out, Furnishing Emergency Healthcare is an international organization that provides humanitarian support to families dealing with chronically ill patients. They are dedicated to assisting patients and their families from around the world and throughout the US when they are forced to leave their homes to seek emergency medical treatment at any of Boston’s prestigious medical centers.

617-566-1900
617-739-0163
Social Security Disability Help

With the number of applications for Social Security Disability on the rise, it is becoming increasingly difficult for people with disabilities to receive a favorable decision from the SSA regarding their disability claim. With denial rates for the initial application stage climbing to well over 60% in recent years, many applicants find themselves unsure of their options and unprepared to further pursue a claim for the benefits that they rightfully deserve. This organization, not in any way affiliated with or endorsed by the Social Security Administration, will provide a free, no obligation consultation about your claim. If caring for your child is causing you to struggle financially, you may be eligible to receive Supplemental Security Income (SSI) benefits. SSI is a federal program that assists families of children and adolescents with special needs or disabilities. To learn about the disability benefits that may be available to brain tumor patients, please see link here.

 

The Butterfly Fund at the Pediatric Brain Tumor Foundation

The Butterfly Fund provides emergency financial assistance for families of children on treatment at certain medical facilities. To qualify for assistance, families affected by a pediatric brain tumor disease must have an unmet financial need as a direct result of the child’s brain tumor diagnosis.

404-252-4107
The Kelly Ann Dolan Memorial Fund

The Kelly Anne Dolan Memorial Fund is dedicated to the uninsured needs of families caring for terminally, critically and chronically ill, seriously disabled or severely injured children through advocacy, education, information and financial assistance.

215-643-0763
215-628-0266
The Matthew Larson Foundation: The IronMatt Family Assistance Program

The mission of The Matthew Larson Foundation is to raise awareness and funds necessary to overcome pediatric brain tumors and to help affected children and families. Their IronMatt Family Assistance Program provides direct financial assistance to families regardless of their socio-economic status, the type of brain tumor (malignant or not), or the progress of the disease.  .

(201) 410-2751
UnitedHealthcare Children’s Foundation

The UnitedHealthcare Children’s Foundation is a non-profit charity dedicated to facilitating access to medical-related services that have the potential to significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan. This support is in the form of a medical grant to be used for medical services not covered or not completely covered by commercial health benefit plans.

855-698-4223

 

Editor’s note: A Kids’ Brain Tumor Cure Foundation has provided these connections as a service to our readership. We are entirely a third party to these entities and therefore do not endorse any one site. If you have other resources to recommend, please email us at [email protected].