Forty-five Low Grade Glioma families were treated to a picture perfect week at Camp Sunshine! From July 15th – 20th, families from across the country convened in Casco, Maine to enjoy the summer camp activities as well as supportive discussion groups. One parent shared that “the LGG week at Camp Sunshine feels like a warm community of friends that have known each other for a long time, despite the fact that some are just meeting.” Another said, “Whether this is a family’s first time at LGG Week or has been multiple times, there is always something new to be learned and definitely new friends to be made.” Parents, siblings, grandparents, aunts and uncles all attended in support of their loved one battling an LGG.
In addition, parents were treated to a special visit from Dr. Adam Resnick, Director of the Resnick/Storm Neuro-Biology Lab at Children’s Hospital of Philadelphia (and his adorable 10 year old daughter), who spent two days at Camp Sunshine talking to parents about some of the latest research advancements in children’s brain tumors and delivered a presentation titled “PLGA – Progress Through Collaboration”. Parents commented on how Dr. Resnick was so inviting and easily approachable and when he explained some of the more technical scientific information, he was able to break it down into language that was easily understandable by the lay-person.
Dr. Resnick’s specific area of interest is in translational research, bringing concepts in laboratory research directly into medical practice (may or may not involve human subjects). In particular, his lab is dedicated to cell signaling cascades and their alterations in pediatric brain tumors with the goal of elucidating the molecular and genetic underpinnings of pediatric brain tumors in an effort to identify and develop targeted therapies. Dr. Resnick’s lab has received funding from AKBTC in the past, but as significant, has helped introduce AKBTC to other research institutions to expedite funding for clinical trials and other basic research projects. Dr. Resnick’s spirit of collaboration is truly incredible and will help catapult the pace of targeted research projects in the low grade glioma and entire children’s brain tumor arena.
Camp Sunshine is a free resource to families with children battling chronic diseases. The LGG week is made possible by a grant from A Kids’ Brain Tumor Cure Foundation, Lauren’s First and Goal, The Lily Fund and a number of other generous benefactors. For more information on Camp Sunshine please see their website at www.campsunshine.org.
To download the presentation “PLGA – Progress Through Collaboration” please click here.