Beyond survival, achieving independence is a primary goal for adult survivors of pediatric CNS tumors. Researchers at St. Jude recently concluded a comprehensive assessment of independence in survivors of CNS tumors by identifying proﬁles of functional and social independence, examining the contribution of physical performance status to failure to achieve independence, and assessing the effect on survivors’ health-related quality of life.
Results of the study, which assessed 306 CNS tumor survivors, concluded that 60% of pediatric CNS tumor survivors do not achieve complete independence when they reach adulthood. According to researchers, the goal should be to deliver therapies that maximize both survival and opportunities for functional and social independence throughout the patient’s lifespan.
Extrapolating from the study further highlights the need for additional scientific research to identify more effective and less toxic treatments so that these children suffer fewer deleterious side effects and will have the opportunity to lead healthy and productive lives. Read the entire study, published in the Journal of Clinical Oncology, here.