A Devastating Diagnosis Drives Desire to Bring About Change
There is no way to prepare for the unfathomable news that your child has a brain tumor.
But, prepared or not, too many parents receive the same news we did […]
Cartoon Character Sonic The Hedgehog Inspires Lizzy’s Recovery
September 8th, 2014|
Everyone has heroes. Someone they look up to or someone who influenced them in their life. My hero is Sonic The Hedgehog. What makes Sonic so awesome to me? […]
From an Author’s Perspective
December 17th, 2013|
Marcia S., author The Spriitelees
www.spriitelee.com
I have three children and one of my dearest friends has three children. When my friend’s son was diagnosed with JPA two years ago, I […]
A Patient’s Perspective
March 18th, 2012|
Emily, age 16, is a PLGA survivor and she shares her insight into her experience after being diagnosed with a JPA.
Clergy Rides for Brain Tumor Research
March 18th, 2012|
by Linda Janower
(Contact AKBTC)
A moving story of the anguish of one grandparent and how one clergy leader stepped forward to help, even knowing that all of his congregants have […]
Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead Team up to raise Awareness
March 18th, 2012|
Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead team up to help raise national awareness about PLGA, an orphan disease.
Media Coverage:
Nebraska v. […]
Katie’s Headache Won’t Go Away
March 18th, 2012|
Katie had been complaining of headaches in retrospect for about a year. I chalked it up to a taste for grape flavored children’s Tylenol and a flair for the […]
Kylie’s Saga
March 18th, 2012|
It began with Kylie complaining of a headache. The pain would last briefly and then she acted fine. Looking back I feel guilty for thinking she was just being […]
Never Giving Up
March 18th, 2012|
My name is Ayis. When I was young I had dreams of being a top athlete and going to the Olympics like my father had done before me all […]