Stories of Inspiration

Never Giving Up

March 18th, 2012|

My name is Ayis. When I was young I had dreams of being a top athlete and going to the Olympics like my father had done before me all […]

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Katie’s Headache Won’t Go Away

March 18th, 2012|

Katie had been complaining of headaches in retrospect for about a year. I chalked it up to a taste for grape flavored children’s Tylenol and a flair for the […]

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Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead Team up to raise Awareness

March 18th, 2012|

Jack Hoffman, 6 year old brain tumor survivor, and Nebraska Cornhuskers Running Back, Rex Burkhead team up to help raise national awareness about PLGA, an orphan disease.

Media Coverage:
Nebraska v. […]

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College Students Raise Funds for Research

December 13th, 2006|

Students from across the country are uniting to raise money and increase awareness about the most common forms of childhood brain tumor.

Starting at Boston University (BU) in 2006, college […]

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A Message of Hope – From a Patient’s Perspective

August 18th, 2006|

This is a story written by a 25-year-old student at Columbia University who recently was diagnosed with a brainstem JPA. Told by many doctors that he was inoperable, he […]

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A Mother’s Story

August 18th, 2006|

Date: August, 2006
Mary Pat, mother: Hi, I looked at your website today and felt compelled to share my son Jack’s story of JPA. We have several reasons for sharing […]

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