Included on this list are other Pediatric Brain Tumor Cancer Foundations as well as General Brain Tumor Cancer Foundations that may provide useful resources for parents of children with brain tumors.
Organization Description

Pediatric Brain Tumor/Cancer Foundations

American Childhood Cancer Organization (ACCO) ACCO, originally the Candlelighters Childhood Cancer Foundation, was founded in 1970 by concerned parents of children with cancer. They are one of the nation’s largest grassroots organizations at the forefront of the crucial battle against childhood cancer. ACCO has over 100,000 families in their network and growing, with 40 affiliates and divisions serving families at the local level across the country. ACCO is dedicated to improving the lives of children living with childhood cancer or its long-term impacts, and to offering critical advice, support, and assistance to families engaged in this life-altering struggle.
Children’s Brain Tumor Foundation (CBTF) Children’s Brain Tumor Foundation (CBTF) is a non-profit founded in 1988 by dedicated parents, physicians and friends. Their mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
CureSearch for Children’s Cancer CureSearch for Children’s Cancer is a national non-profit foundation that accelerates the search for cures for children’s cancer by driving innovation, transcending research barriers and solving the field’s most challenging problems. We fight every day to make treatments and cures possible for the 43 children diagnosed with cancer each day.
Pediatric Brain Tumor Consortium The Pediatric Brain Tumor Consortium is a multidisciplinary cooperative research organization devoted to the study of correlative tumor biology and new therapies for primary CNS tumors of childhood. PBTC’s mission is to contribute rapidly and effectively to the understanding and cure of these tumors through the conduct of multi-center, multidisciplinary, innovative studies with designs and analyses based on uniformly high quality statistical science.
Pediatric Brain Tumor Foundation The Pediatric Brain Tumor Foundation (PBTF) is a 501 (c)(3) nonprofit organization dedicated to supporting the search for the cause of and cure for childhood brain tumors.
The Childhood Brain Tumor Foundation The Childhood Brain Tumor Foundation was founded by families, friends and physicians of children with brain tumors. They are an all-volunteer organization with a mission to raise funds for scientific research, heighten public awareness and improve prognosis and quality of life for those that are affected.

General Brain Tumor/Cancer Foundations

American Brain Tumor Association The ABTA provides extensive written and web accessible information about specific brain tumors, treatment options, and clinical trials; facts sheets, resource sheets, patient conferences, patient phone line, newsletter; scientific research funding. It also provides patient handbooks including ”A primer of brain tumors: A patient’s reference manual about metastatic tumors to the brain and spine” and “Dictionary for brain tumor patients”.
Brain Tumor Foundation Brain Tumor Foundation (BTF) is a non-profit organization that guides and supports patients, families and caregivers touched by a brain tumor. BTF also raises awareness about the need for early detection of brain tumors.
Brain Tumour Foundation of Canada Funds brain tumor research, provides patient and family support services, and educates the public. The foundation also publishes a quarterly newsletter, BrainStorm, and pediatric and adult patient resource guides.
Central Brain Tumor Registry of the United States A not-for-profit corporation that collects data on primary benign and malignant brain tumors into a central database.You can view some of the CBTRUS’s data on fightPLGA’s Current Research page.
Harvard Brain Tissue Resource Center The Harvard Brain Tissue Resource Center has been established at McLean Hospital as a centralized resource for the collection and distribution of human brain specimens for brain research. Research over the past decade has shown that the study of human brain tissue is essential to increasing our understanding of how the nervous system functions. Most recently, postmortem human brain research has played a significant role in the development of a genetic test for Huntington’s disease as well as a treatment for Parkinson’s disease. Similarly, neurochemical and anatomical studies focusing on the biological nature of the severe mental illnesses are now emerging and bringing forth new hope for understanding the underlying brain mechanisms responsible for psychosis and other symptoms associated with these debilitating brain disorders. In order to perform research into the neurological or psychiatric disorders, it is vital to collect normal control tissue as well.
MD Anderson Brain and Spine Center MD Anderson’s Brain and Spine Center is committed to the diagnosis and treatment of brain tumors, spine tumors and skull base tumors. We take a team approach to give you the most advanced treatment with the least impact on your body.
National Brain Tumor Society The National Brain Tumor Society exists to find a cure for brain tumors. We improve the quality of life of brain tumor patients, survivors and their families by providing access to psychosocial support, information and resources.
National Cancer Institute The NCI provides information for childhood brain tumor patients about treatment, including surgery, chemotherapy, radiation therapy, and immunotherapy. They have information on clinical trials, as well as other relevant information for PLGA kids.
National Institutes of Health (NIH) Neurological Institute The nation’s leading supporter of biomedical research on disorders of the brain and nervous system, the Neurological Institute of the NIH strives to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.
ONCOLINK – University of Pennsylvania OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. ONCOLINK provides cancer information and support. Included are articles, clinical trial lists, PDG documents, CANCERNET publications, and other resources.
The Brain Tumour Charity The Brain Tumour Charity is the UK’s largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts through research to find new treatments, awareness and support to save lives and improve quality of life.
The National Academies of Sciences Engineering Medicine The Institute provides a vital service by working outside the framework of government to ensure scientifically informed analysis and independent guidance. NASEM’s mission is to serve as adviser to the nation to improve health. The Institute provides unbiased, evidence-based, and authoritative information and advice concerning health and science policy to policy-makers, professionals, leaders in every sector of society, and the public at large.

Editor’s note: A Kids’ Brain Tumor Cure Foundation has provided these connections as a service to our readership. We are entirely a third party to these entities and therefore do not endorse any one site. If you have other resources to recommend, please email us at [email protected].

Revised 6/20/2016