Title Author(s) Publication Date
Pediatric Low Grade Astrocytoma (PLGA) Press
Push for research, cures after Methuen girl is diagnosed with brain tumor Jill Harmacinski The Eagle Tribune 06/17/08
Appleton parents share daughter’s battle with brain cancer (pdf) M.P. King Appleton Post Cresent 1/11/08
Special Gift for Girl Comes From Unlikely Place (pdf) Cheryl Sherry Appleton Post Cresent 12/25/07
Shopping to Fight Childhood Cancer (video)
WFRV TV 10/24/07
Two Year Old Appleton, WI girl wages battle for her life (pdf) Cheryl Sherry Appleton Post Cresent 10/ 21/07
Funding for sick kids (video)
Elizabeth Cohen finds some parents who turn to do-it-yourself funding to treat their children’s rare disease.
Elizabeth Cohen CNN 9/4/07
Ensuring Money You’ve Raised Goes to Help Your Sick Child
Amy Marcus, focuses on the struggles of one family who faced and are conquering the challenges of ensuring that their fundraising efforts were going to be used for targeted research that would shed light on the disease that afflicted their child, JPA.
Amy Dockser Marcus Wall Street Journal 1/30/07
BU fights JPA tumor with 5K run on campus, a nationwide group that raises money for research on juvenile pilocytic astrocytoma (JPA), a type of brain tumor in children. Jenna Nierstedt Daily Free Press 10/2/06
Riding To Fight Brain Tumors
The parents of a 4-year-old boy who has a rare brain tumor have organized a cycling benefit Sunday to raise money to combat the disease.
Richard C. Lewis Boston Globe 5/18/06
Putting Mettle to Pedals to Save a Boy’s Life
An article telling the story of TJ and the Brain Tumor Society’s Ride for Research.
Carolyn Thorton Providence Journal 05/11/06
Children’s Brain Tumor Press
Children with Brain Tumors Don’t March
An article about the pain everyone feels following the diagnosis of a brain tumor, even doctors.
Michael Arnold Glueck & Robert J. Cihak Newsmax.com 05/02/05
A Cry in the Dark
When a rare cancer strikes, a patient has few places to turn.
Amy Dockser Marcus Wall Street Journal 03/20/06
Pediatric Brain Tumor Survivors and Late Effects
What happens after treatment? The aftermath of current treatments for pediatric brain tumors.
Maggie Fox Reuters 08/22/05
Emily’s Story Part 1 Part 2 Part 3
A series of articles “chronicling how a young woman disabled by brain tumors came to terms with her first year at Harvard, and how Harvard came to terms with her.”
Thomas Farragher Boston Globe 06/19/05
Parents Face Painful Choice In Treating Childhood Cancer
New Brain-Tumor Protocol Highlights Growing Tradeoff Between Survival, Side Effects
Amy Dockser Marcus Wall Street Journal 03/01/05
They’re Making the Best of It Mother organized “Pediatric Brain Tumor Awareness Day” to raise money and awareness for pediatric brain tumor research. M. English The Colonial News 10/13/06
Other Press
Cancer Scientists Lament Funding According to the recent Wall Street Journal article below, our children’s futures are in OUR hands. With overall cancer research dollars flat over the last few years, there is no indication that this will change going forward. If we want to find new, less invasive, less toxic treatments and a cure for our children….we will have to raise the money ourselves. Marilyn Chase The Wall Street Journal 05/31/08
Pitt gets money to fight brain tumors The Tribune Review 04/24/08
National Institutes of Health, Office of Rare Diseases, How to handle Orphan Diseases
The Director of NIH, ORD talks with a WSJ reporter about the challenges of testing drugs and treatments for orphan diseases, illnesses that affect only a tiny proportion of people.
Amy Dockser Marcus Wall Street Journal 1/29/07
Expansive Effort Is Begun to Study Rare Diseases
The National Institutes of Health has started the first of what will eventually be about 50 clinical studies looking into a variety of rare diseases and disorders.
Jennifer Corbett Dooren Wall Street Journal 5/16/06
Next Chapter: After Leukemia, Family Struggles To Define ‘Normal’
Jack Streeter, 8, Joins Ranks Of Cancer Survivors Coping After Treatment — The Challenge of Kickball
Amy Dockser Marcus Wall Street Journal 06/09/04
Bloodless Revolution
Imagine an operating room requiring no sterilization because there are no wounds, where doctors don’t wear scrubs because there is no blood, where anesthesia is unnecessary because there is no pain…
Harbour Fraser Hodder Harvard Magazine 11/00