Dear Amy:

Thanks so much for your kind words and encouragement. I have found this journey so frustrating. People that know me and care about do sometimes wonder why I am still so worried about Abbie because her tumor was “benign”.

I have read everything I can about JPA’s since Abbie’s diagnosis so I know that it would be crazy for me not to be worried.

I am interested in doing anything I can to help fight this disease. My motto is that this tumor picked the wrong kid, because I will not follow the wait and see approach!!

I look forward to working together to help defeat this disease! I am so grateful for and for wonderful people like you to help families like mine through this difficult journey.

Thanks again!